Creato da ass.mariaruggieri il 25/11/2009

Ass.Maria Ruggieri

Associazione Onlus Maria Ruggieri per la promozione della ricerca e cura dell'Angiosarcoma e Tumori rari

 

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dimariamonicaa
dimariamonicaa il 08/04/16 alle 20:16 via WEB
Buongiorno Sig. e Sig.ra, Avete un progetto ? Una necessità di finanziamento o altri ? Potete ottenere di prestito al tasso d'interesse di 2% all'anno a più di € 500.000. N/B: “Un credito vi impegna e deve essere rimborsato. Verificate le vostre capacità prima di impegnarsi„. Conttato: companybillcredit@gmail.com Conttato: companybillcredit@gmail.com
 
cuomocarmela1972
cuomocarmela1972 il 16/12/15 alle 01:05 via WEB
Ciao Giorgio, se mi leggi questa è la mia email cuomocarmela1972@libero.it , mia figlia ha un angiosarcoma alla mamella gli è stato tolto il seno da pichi giorni, vorrei sapere checura fai in giappone , perché le chemio e le radio non sono sicuro che saranno efficacei per eliminarlo del tutto.....ti prego se puoi rispondermi alla mia e mail...grazie giorgio
 
myriammyriam7
myriammyriam7 il 01/03/14 alle 19:43 via WEB
Ciao Rita, mi sono iscritta a questo blog proprio per contattarti. Mi chiamo mariarosaria ed ho mia nipote affetta da emangioendotelioma epitelioide al momento al peritoneo e questo le provoca dolori importanti.Poiché è questa una malattia rara e si trovano poche notizie mi piacerebbe confrontarmi con te se non ti dispiace. Ti do la mia email così se vorrai potrai contattarmi grazie. myriam.7@hotmail.it
 
Mariantonietta68
Mariantonietta68 il 21/12/12 alle 16:15 via WEB
Buonasera! Mi sono appena iscritta al blog al quale sono giunta perché cercavo informazioni sulla cura dell'angiosarcoma. Si tratta di mia cognata che ha 42 anni. Nel 2004 le diagnosticarono un carcinoma alla mammella sinistra. Intervento (quadrante), chemioterapia e purtroppo anche la radioterapia. Nel 2010 si presenta l'angiosarcoma, in seguito al quale subisce la masteoctomia totale con ricostruzione. Nel 2011 nuovo intervento per la rimozione della protesi e del muscolo più chemioterapia. Lo scorso settembre nuova formazione nello sterno, non operabile in quanto vicino all'aorta. Fa la chemioterapia ma l'angiosarcoma diventa diventa più grande e ha versamento di liquido nei polmoni. Ora è ricoverata per il drenaggio dei liquidi. Ho bisogno di sapere se ci sono delle cure alternative o nuove cure. Auguri a tutti coloro che quotidianamente lottano contro questa malattia! Grazie!
 
kevinkigan1
kevinkigan1 il 04/06/12 alle 15:40 via WEB
mia sorella daniela di anni 28 le era stato diagnosticato un angiosarcoma al cuore.ha lottato con tutte le sue forze ma purtroppo non ce l'ha fatta...tutto era iniziato l'estate 2011 da un semplice dolore alla spalla, i primi svenimenti...medici che non sapevano che diagnosi dare... ciao irene
 
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Utente non iscritto alla Community di Libero
bamboo furniture il 21/09/11 alle 05:14 via WEB
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Utente non iscritto alla Community di Libero
rita il 30/06/11 alle 00:08 via WEB
Per prima cosa, ben tornato a casa! Vorrei sapere se puoi indicarmi strutture specializzate nella cura dei sarcomi. Al mio compagno è stato diagnosticato un angiosarcoma epitelioide, e facendo rivalutare i vetrini emangioendotelioma epitelioide. Due cicli di chemio(adriamicina e ifosfamide) non hanno sortito grossi risultati. Ora sta facendo radio su lesione ossea a rischio frattura e poi ricomincerà chemio di seconda linea. Vorrei potermi rivolgere ad un centro specialistico anche all'estero. Grazie
 
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giorgio ferraiuolo il 15/06/11 alle 18:28 via WEB
Dopo 120 giorni di assenza dall'Italia ... lunedì 20 il mio rientro. Sono curioso di sapere cosa sosterranno i Centri Sanitari Regionali Pubblici Italiani a riguardo delle cure che ho voluto, per certo conosco i risultati già ottenuti con l'adroterapia su di me in Giappone, dove già da un decennio alcuni tipi di tumore vengono curati con una recidiva inferiore al 3% dei casi. Probabilmente la poca o cattiva informazione rendono il concetto di adroterapia un pò oscuro e, forse, malvisto da qualcuno. Qui sono il primo cittadino europeo in assoluto ad essere curato con l'adroterapia ed anche il primo caso al mondo di trattamento su tre metastasi polmonari . Chissà se la mia storia importerà a qualcuno di essi.
 
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CIAO,MARIA

 

         Maria Ruggieri   

 

 

...Gocce di memoria.... 

 

CHI SIAMO

"Associazione Onlus Maria Ruggieri per la Promozione della Ricerca e Cura dell'Angiosarcoma e Tumori Rari ".

Costituita il 09 febbraio 2009 é un'organizzazione non lucrativa di utilità sociale Onlus (come da Statuto).Presidente dell'Associazione é il dott. Ruggieri Vito Michele,Segretario il sig.r Ruggieri Vincenzo,facenti parte dei soci fondatori.

 

DOVE SIAMO

La sede legale dell'Associazione é in Terlizzi,alla prov.le Terlizzi-Giovinazzo n°10.

La sede operativa é in fase di apertura.

Potete contattarci all'indirizzo mail

ass.mariaruggieri@libero.it

 

ATTIVITA'

  • Promozione della Ricerca e Cura dell'Angiosarcoma (in special modo alla mammella)
  • Tumori rari

 

 

COME PUOI SOSTENERCI

 -BONIFICO BANCARIO intestato ad “Associazione Onlus Maria Ruggieri”,

 IBAN : IT70 V054 2441 7000 0000 1000 486 *.

 

-CONTO CORRENTE POSTALE 96808746, intestato a “Associazione  

 Onlus Maria Ruggieri”, via Giovinazzo 10, 70038 Terlizzi (BA)*.

 

-DONANDO IL TUO 5XMILLE NON TI COSTA NULLA!

 Per destinare il tuo 5xmille all'Associazione,scrivi il CODICE FISCALE :

 93367280729 unitamente alla tua firma nell'apposito riquadro

(destinato alle associazioni che operano secondo l'art.10 del D.lgs 460/97)

 dei modelli per la dichiarazione dei redditi CUD, 730 ed Unico.

 

*Le donazioni sono detraibili ai fini Irpef nella misura del 19% e deducibili dal reddito  

 complessivo nel limite del 10%

 

-Acquistando i manufatti realizzati da noi.

  Inviti Prima Comunione ,nel blog sono presenti altri modelli.

 

 

Sostienici abbiamo bisogno del tuo aiuto!

 

 

 

 

AREA PERSONALE

 

COMUNICAZIONE & MEDIA

L'Associazione é stata riconosciuta ed iscritta in data 10 Aprile 2009 nell'albo delle Onlus Puglia al numero 123.

Ha ricevuto concessione Patrocinio Regione Puglia il 09 Giugno 2009.

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